These past 3 weeks have been filled up lots of ups and downs. I told my oncologist 3 weeks ago that the meds to help with the chemo side effects were really not helping. I told her I wanted to stop treatment as I was so miserable. She said she wanted to keep going as my cancer marker is really good and has been staying at a good level. She gave me different meds to try.
So I got more prescriptions. I think I have a full pharmacy in my house now. I have a patch that I wear behind my ear to help with the nausea. I told her I am not taking one of the meds for diarrhea, as it causes blurry vision. It was bad. So I am back to the first med and so far it is working. She did say, she understands that quality of life is very important too. but to try for another 3 weeks and see what happens.
So far it's been pretty good. However, it is not completely gone. Side effects like to strike and let me know that they are still in control.
Last weekend-Saturday, I went down to my brother Dave's for a visit. I took stuff to stay over night. We went to the river, we rode jet ski, we played in the water, we had good visits and laughs. A really good laugh thanks to Jake and Johnny, they were showing off on the jet ski and it bucked them both off right in front of us.
Getting to the river was a bit of a challenge. My family needed to find an area that I could get down and get back up. There was a lot of ..."Auntie Dolly won't be able to get down that drop off...". So family continued until the right spot was found. I so appreciate them taking my lack of strength/agility into the planning.
It was fun. Afterwards we grilled, we sat outside and visited, but then my pals-side effects decided to ruin the rest of the night. Stomach churning, knowing what it meant, I chose to come home and not stay overnight. I have been thru this too many times already. I got home and 15 minutes later, side effects hit hard. I spent all of Sunday in pajamas in my recliner, with many bathroom trips. On Monday...the 4th of July, more of the same. Oh well.
Tuesday, back at work it was busy. One of my co-workers told me to keep my distance as she didn't feel that great and didn't want me to get sick. She ended up being off a couple days.
I play Haddaway on my station...his one hit is "What Is Love? "singing about "..baby, don't hurt me...". I know his song is about romance. But I think I can also say...What Is Love? Love is your family wanting you to be included and taking time to find the right spot for me. Love is having co-workers take my compromised immune system seriously and make sure I am safe. Love is family, friends, work families all reaching out and making sure I am ok.
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